In early April, I became a grandmother (Gigi) for the first time. Reaching this important milestone gave me pause. In…
Lelainia Lloyd
Lelainia lives on the beautiful west coast of Canada, in Port Moody, British Columbia. Lelainia was diagnosed with neuromyelitis optica spectrum disorder in 2012 after initially being misdiagnosed with multiple sclerosis in 2007. She has lived with NMO since she was 12. Lelainia believes that as patients, our stories are powerful. Her hope is that by sharing her experiences living with NMO, she will help educate, uplift, and inspire the rare disease community.
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Articles by Lelainia Lloyd
My quest to become a wheelchair owner and user began with pitching the idea to members of my care…
When I was being diagnosed, my initial MRI revealed that I had long lesions over several sections of my spinal…
One of the most difficult aspects for me of living with neuromyelitis optica (NMO) is dealing with chronic…
In my circle of friends, we often joke that being a rare disease or chronic illness patient is a full-time…
When I think back over the years I’ve lived with my rare disease,…
In the years since I was diagnosed with NMO, I have had good days, and then bad days when…
Just over a year ago, I started a new biologic. As part of…
As a rare disease patient living with neuromyelitis optica (NMO), I take an enormous number of medications. I have…
In the United States, March is Multiple Sclerosis (MS) Awareness Month, but did you know it’s also Neuromyelitis Optica (NMO)…