When I think about Rare Disease Day 2020, it’s with mixed emotions. The day before, I got up…
Lelainia Lloyd
Lelainia lives on the beautiful west coast of Canada, in Port Moody, British Columbia. Lelainia was diagnosed with neuromyelitis optica spectrum disorder in 2012 after initially being misdiagnosed with multiple sclerosis in 2007. She has lived with NMO since she was 12. Lelainia believes that as patients, our stories are powerful. Her hope is that by sharing her experiences living with NMO, she will help educate, uplift, and inspire the rare disease community.
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Articles by Lelainia Lloyd
Every month for the past 13 years, I’ve had a standing date booked in my calendar. The third Saturday of…
I can trace my first neuromyelitis optica (NMO) symptoms to when I was 12 years old. I’d be walking down…