No status quo:
Continually improving NMOSD care

‘Time is brain’ when it comes to NMO treatment timing

Mirla Avila, MD, explains the importance of regular follow-up care, monitoring for new symptoms, and seeking prompt medical attention when…

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About the series

We listened to the conversations happening across the NMOSD community to uncover the questions and challenges that matter most. In this video series, community members share their personal journeys, hard-won wisdom, and advice for navigating life with this condition. These are voices of experience from real people who truly understand.

Episodes

‘Time is brain’ when it comes to NMO treatment timing

Mirla Avila, MD, explains the importance of regular follow-up care, monitoring for new symptoms, and seeking prompt medical attention when…

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Prep work before challenging poor NMO care

Pauline Grant Richardson shares how she prepares her "defense" before challenging poor NMO care.

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Finding the right treatment mix for life with NMO

Jennifer van Amerom discusses working closely with her neurologist to find the approach that best supports her quality of life.

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Recognizing relapse versus fatigue with NMO

Jennifer van Amerom shares how she differentiates between a disease relapse and fatigue.

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Tell your NMO doctor the full truth

Mirla Avila, MD, explains how honest patient feedback strengthens the doctor-patient partnership.

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Claiming a seat at the table through self-advocacy with NMO

Pauline Grant Richardson shares what to do when a treatment plan doesn't feel personalized.

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Why treatment adherence matters in NMOSD

Mirla Avila, MD, explains why staying consistent with treatment is essential to help reduce the risk of attacks and long-term disability.

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