How to Offer Help to a Loved One With NMO
When I first became sick with neuromyelitis optica (NMO), people often told me how sorry they were. I believe they genuinely meant it, but it’s always an uncomfortable and awkward conversation for both…
The Beginner's Guide to Walking — Jennifer V.
Jennifer V. (she/her) received her diagnosis of neuromyelitis optica spectrum disorder — aquaporin-4 positive — in early 2010. Residing in Toronto, Canada, Jennifer actively manages her condition, which is often unseen, by maintaining a busy schedule. She serves as a professor at George Brown College, works as an HR consultant, and is a passionate patient advocate. Jennifer also plays the roles of a devoted mother to her daughter, a pug’s loving guardian (her fur baby), a dedicated wife, caring sister to three siblings, and a protective daughter. In moments of sleeplessness, Jennifer finds solace in pug photos and videos.
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How attitudes toward me changed when my disabilities became visible
As a private person, I find it easier to have an invisible disability, despite the emotional toll of appearing “fine” while feeling far from it. For years, I was able to privately manage my…
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