Challenging Assumptions About What It Means to Be Disabled
Words can hurt, especially labels. We can deny a label all we want, but terms like “disabled” will close many doors. What does it mean to be disabled, though? I find the term offensive…
The Beginner's Guide to Walking — Jennifer V.
Jennifer V. (she/her) received her diagnosis of neuromyelitis optica spectrum disorder — aquaporin-4 positive — in early 2010. Residing in Toronto, Canada, Jennifer actively manages her condition, which is often unseen, by maintaining a busy schedule. She serves as a professor at George Brown College, works as an HR consultant, and is a passionate patient advocate. Jennifer also plays the roles of a devoted mother to her daughter, a pug’s loving guardian (her fur baby), a dedicated wife, caring sister to three siblings, and a protective daughter. In moments of sleeplessness, Jennifer finds solace in pug photos and videos.
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After a year of Ultomiris infusions, I finally feel stable
The first time I sat in the infusion chair to receive Ultomiris (ravulizumab-cwvz), I felt something I hadn’t experienced for a long time after being diagnosed with neuromyelitis optica spectrum disorder (NMOSD): hope.
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