I have this recurring dream where I’m trapped in a room. I can hear voices on the other side of the door, so I call out, except my voice feels heavy. The words are caught in my mouth, so no one can hear me. I try to get up. I’m…
stress
In the weeks after my youngest daughter, Bella, was diagnosed with neuromyelitis optica (NMO) in 2017, work and finances weighed heavily on my mind. I’d started a new job a month before Bella got sick, so I didn’t have any paid time off and didn’t qualify for the Family…
If there were a spot on my social media profiles that asked me to describe my position on religion, I’d write, “It’s complicated.” That’s because I’ve had a few too many falling-outs with my God. ‘Why me?’ I was in my early 20s when I suffered my first major…
Nothing irks me more than when a medical specialist tells me to “reduce the stress” in my life. It’s as if stress is the same as a few extra pounds of weight we can cut out with some habit changes. It imagines we can take medication for stress the same…
Caring for our mental health and pursuing wellness require a lifetime commitment and hard work. It’s sometimes easier said than done, but taking a moment to yourself to reflect on the day, or on a feeling or emotion, can do wonders for your mental health, especially when living with chronic…
My mom was incredibly angry with me, and rightfully so, the day I lost my retainer. We fed four kids on one income, yet somehow afforded braces and then a retainer, which I was supposed to wear all the time except when eating. I remember playing with the retainer in…
I have a theory: I’m convinced you can scream (almost) anything at a baseball game. The more obscure the cheer, the greater it is. “You call that peanut butter?!” “Turn ’em upside down!” “Let’s go, captain! Take ’em out to sea!” (This one is way more fun when said in…
“Ladies and gentlemen, please welcome to the MRI, all the way from the changing room, the one and only …” I’ve sauntered into the room and grabbed the finger heart rate monitor, only to turn it into a makeshift microphone. The nurse looks at me, clearly unamused. I know…
When someone in your family has an illness, it can cause physical wear and generate an emotional and financial burden. The person who gets sick often loses their income but must pay medical bills in addition to regular bills. Even after being discharged from the hospital, a patient will…
When I think back over the years I’ve lived with my rare disease, neuromyelitis optica (NMO), and several comorbidities, including the times I received my life-changing diagnoses, one thing in particular stands out: Not once…