I was born in a small town two hours away, but Toronto has been my home for more than two decades, and it’s where my husband and I are raising our daughter. Recently, while hosting one of her schoolmates for the week, we decided to play tourists in our own…
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When my neuromyelitis optica spectrum disorder (NMOSD) was stable, I dreaded having annual medical checkups. They felt like an unnecessary hassle that required me to take time off work, fight downtown traffic, hunt for parking, and wait for an hour to see my specialist, only to learn that nothing…
A rare disease puts an economic burden on the patients, families, and caregivers that it affects, and will no doubt be an integral part of discussions on Rare Disease Day 2022, which brings international awareness about the more than 300 million people living with rare disorders. Part of that…
Flying can be an ordeal for many people with disabilities who rely on wheelchairs to get from point A to point B. Sometimes disabled travelers get to their destination only to realize their wheelchair or scooter is broken or missing. In 2019, the year after airlines were required to release…
Recent Posts
- Getting older with NMOSD reveals some powerful truths
- 2 approved treatments for NMOSD may work better than off-label one
- It’s important to realize when the caregiver needs care
- MRI scan of waste system in brain may track NMOSD severity, progression
- My mom’s example of strength still guides me in life with NMOSD