It’s one thing to receive a neuromyelitis optica (NMO) diagnosis, and another to own it — to feel you can self-advocate and boost awareness with authority and honesty in social, work, and clinical spaces. To mark NMO Awareness Month, we partnered with patient advocate Jennifer V. and other writers to create a series of articles that offer practical, supportive, and inspiring advice for how you can grow into empowerment to do exactly that.Â
This is part of a series about neuromyelitis optica for NMO Awareness Month. Go here to read more. All relationships require care, attention, and communication. But when living with a rare autoimmune disease…
Read moreThis is part of a series about neuromyelitis optica for NMO Awareness Month. Go here to read more. While neuromyelitis optica spectrum disorder (NMOSD) often causes excruciating pain that can greatly affect…
This article is part of a series about neuromyelitis optica spectrum disorder for NMO Awareness Month. Go here to read more. Advocates are not chosen; circumstances force people into standing up for their…
This is part of a series about neuromyelitis optica for NMO Awareness Month. Go here to read more. You may be understandably reluctant to tell…
Neuromyelitis optica spectrum disorder affects you at work, with friends, or even in the ER. Here are some tips on how to explain the disease quickly and effectively to avoid mishaps and awkward situations.
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