Pauline Grant shares how she frames her condition for herself, and how it empowers her to advocate for herself.
Transcript
First of all, and this is what I told myself from the beginning: “I am not NMO, or NMO doesn’t have me. NMO is what I treat, or what the medical team treats.”
Always be an active participant in your plan of care. Have a positive mindset. Be mindful—mindfulness is great. Have self-compassion, and move. Have movement.
Again, speak up. Speak out, because you have a seat at the table at all times. Tell yourself that you should be the most important person in that room, because it’s all about you.
Another thing I should add is setting goals for yourself. One of my mottos is, “Life is beautiful, but the lived experience is something that makes it more valuable.”
Above all, having good people around you is what helps you make great memories.
