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November 12, 2021 Columns by Jennifer V.

Turn Up the Volume, but Only Until It Hurts: My NMOSD Diagnosis Story

I will always love the feeling of a good bass line, the way the sound escapes concert speakers and vibrates through my entire body. It’s poetic justice that this feeling can now trigger painful spasms, a symptom of neuromyelitis optica spectrum disorder (NMOSD). My husband (then fiancé) and I had…

January 19, 2021 Columns by Lelainia Lloyd

I Saved My Own Life After Being Repeatedly Misdiagnosed

I can trace my first neuromyelitis optica (NMO) symptoms to when I was 12 years old. I’d be walking down a flight of stairs, and for a split second it was as if a switch had been thrown, cutting off communication between my brain and my legs, and I’d fall…

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