transverse myelitis

Gravity is my friend. Even if I’m tired, gravity will pull my snowboard and me down the mountain. I like to ride alone because I need to listen to music, which I only play in one ear so I can hear my surroundings. During the offseason, I build music…

I will always love the feeling of a good bass line, the way the sound escapes concert speakers and vibrates through my entire body. It’s poetic justice that this feeling can now trigger painful spasms, a symptom of neuromyelitis optica spectrum disorder (NMOSD). My husband (then fiancé) and I had…

I can trace my first neuromyelitis optica (NMO) symptoms to when I was 12 years old. I’d be walking down a flight of stairs, and for a split second it was as if a switch had been thrown, cutting off communication between my brain and my legs, and I’d fall…