NMOSD pain treatments vary, but so do the responses

Note: This column describes the author’s own perspectives on several potential treatments for pain. Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy.

I’ve said it before, and I’ll say it a thousand times more: Living with pain is the worst. Sure, we all deal with pain, but its effect on each of us is different. And because pain is so subjective, managing it becomes tricky.

Many specialists refer patients to pain management clinics, where experts are better equipped to help. But ask any neuromyelitis optica spectrum disorder (NMOSD) patient if their pain is actually being managed to their satisfaction, and I’d bet most, if not all, would say, “Absolutely not.”

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Many NMOSD patients manage their pain with distraction techniques, including advocacy work to channel their energy into raising awareness and supporting others in the community. Others turn to physical fitness or physiotherapy, which not only strengthens the body but can also provide a mental break from the constant discomfort.

Then there’s the art of simply pretending the pain doesn’t exist. Denial can be oddly powerful, even if temporary. For some, ignoring the pain and pushing forward are coping mechanisms. Massage therapy is also a popular choice, offering both physical relief and a much-needed escape for the mind.

While none of these techniques are cures, they can provide moments of reprieve in the battle against chronic pain.

Medication and supplements

Medication and supplements also help many NMOSD patients manage their pain. Gabapentin is a common choice, often prescribed at increasing doses until the patient reaches the maximum allowed. Its effectiveness varies from patient to patient, however, and some research doubts it helps. Some turn to cannabis, which is becoming more popular because of its pain-relieving and anti-inflammatory properties.

Others explore more unconventional options, like magic mushrooms (psilocybin), which are being studied for their potential to alleviate chronic pain and improve mood. But it’s illegal in most of the United States. (Oregon is an exception.)

Antidepressants such as Cymbalta (duloxetine) and even ketamine are sometimes prescribed, as some believe the medicines can reduce pain perception by targeting the brain’s neurotransmitters. For more localized relief, lidocaine patches are frequently used to numb specific areas of intense pain. While these medications don’t offer a complete solution, they’re essential tools in many patients’ pain management arsenal.

Power of prayer and spirituality

For many NMOSD patients, prayer and spirituality can play a key role in managing pain. Studies suggest that those with a strong spiritual foundation are less likely to experience depression, which can amplify physical pain.

Engaging with a spiritual community provides emotional support and a sense of belonging, offering comfort on the most difficult days. Practices like prayer and meditation also allow patients to center their minds, fostering a sense of inner peace and acceptance. Meditation, in particular, can help calm the body’s response to pain, making it a valuable coping mechanism. While spirituality may not eliminate pain, it can provide a powerful source of strength and resilience.

Pain is different for everyone, and so are pain solutions. Do what’s best for you.

Note: Neuromyelitis News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health providers with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Neuromyelitis News or its parent company, Bionews, and are intended to spark discussion about issues pertaining to neuromyelitis optica spectrum disorder.