Living with neuromyelitis optica spectrum disorder (NMOSD) often feels like I’ve been dropped into a lifelong board game tournament without warning, training, or even a rule book. I’ll be 45 next week, that age where life itself becomes a complicated mix of caregiving, worrying about aging parents, supporting friends…
Discussion
In a real-world study of adults living with neuromyelitis optica spectrum disorder (NMOSD) in Japan, Uplizna (inebilizumab) was linked to fewer relapses, generally stable disability, and less use of corticosteroids. In addition, the approved therapy’s safety profile was consistent with what had been observed in earlier studies. “Our…
Discussion
When I was diagnosed with neuromyelitis optica spectrum disorder (NMOSD), my greatest frustration wasn’t my inability to walk, the numerous tests and MRI scans, or even the number of needles. It was trying to articulate the severity of this disorder to my parents. My parents were both Indonesian, raised…
NMOSD is a progressive autoimmune disease where the immune system mistakenly attacks nerve cells, affecting the nervous system. Learn more about the disease here.
Scientists do not know the exact underlying cause of NMOSD. Self-reactive antibodies that target AQP4 are known to play a major role. Learn more about what causes the disease here.
When the disease affects the optic nerve (optic neuritis), it can result in pain inside the eye and possibly blurry vision or vision loss. Learn more about the symptoms of the disease here.
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