Note: This column describes the author’s own experiences with Ultomiris (ravulizumab-cwvz). Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. When Alexion Pharmaceuticals first approached me about being featured for Rare Disease Day on Feb. 28, I initially declined the offer.
Nearly a third of people with neuromyelitis optica spectrum disorder (NMOSD) may have cognitive impairment, especially in the areas of attention/processing speed and executive function, according to a study in Brazil. Processing speed refers to a person’s ability to receive, interpret, and respond to information, while executive function refers…
Discussion
During a recent appointment with my general practitioner, I was surprised that I didn’t have to wait. She called my name just five minutes after my scheduled time and apologized for being late, though I didn’t feel that she was. At the start of our visit, she explained that her…
NMOSD is a progressive autoimmune disease where the immune system mistakenly attacks nerve cells, affecting the nervous system. Learn more about the disease here.
Scientists do not know the exact underlying cause of NMOSD. Self-reactive antibodies that target AQP4 are known to play a major role. Learn more about what causes the disease here.
When the disease affects the optic nerve (optic neuritis), it can result in pain inside the eye and possibly blurry vision or vision loss. Learn more about the symptoms of the disease here.
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