Tonic spasms come on suddenly, last seconds to minutes, and feel like an eternity. They’re a painful and daily reality…
Jennifer V.
Jennifer V. (she/her) received her diagnosis of neuromyelitis optica spectrum disorder – aquaporin-4 positive (NMOSD-AQP4) in early 2010. Residing in Toronto, Canada, Jennifer actively manages her condition, which is often unseen, by maintaining a busy schedule. She works as an HR consultant, and is a passionate patient advocate. In her personal life, Jennifer plays the roles of a devoted mother to her daughter, a dog's loving guardian (her fur baby), a dedicated wife, caring sister her siblings, and a protective daughter. You can stay updated with Jennifer by following her column, "The Beginner's Guide to Walking."
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Articles by Jennifer V.
As a private person, I find it easier to have an invisible disability, despite the emotional toll of appearing “fine”…
Having to deal with my sixth major neuromyelitis optica spectrum disorder (NMOSD) attack is not how I wanted to…
Wouldn’t it be nice to glide into the holiday season with everything checked off your to-do list? Every year, I…
I thought I had put on a brave face and spoken in a calm tone. I’d told my daughter that…
During my recent family vacation, I made sure to take several mental pictures of the beach, sunrise, and calming blue…
Having a rare disease such as neuromyelitis optica spectrum disorder (NMOSD), especially when it’s an invisible disease, is like…
I first encountered neuromyelitis optica spectrum disorder (NMOSD) 15 years ago. Faced with the unknown after a transverse…
September marked 15 years since I was first affected by neuromyelitis optica spectrum disorder (NMOSD). The specific day came…
Throughout my journey with neuromyelitis optica spectrum disorder (NMOSD), I’ve often overlooked the importance of maintaining good vein health.