I’m embarrassed that I was embarrassed. I was walking out of the conference hall with some new acquaintances, making polite…
Jennifer V.
Jennifer V. (she/her) received her diagnosis of neuromyelitis optica spectrum disorder – aquaporin-4 positive (NMOSD-AQP4) in early 2010. Residing in Toronto, Canada, Jennifer actively manages her condition, which is often unseen, by maintaining a busy schedule. She works as an HR consultant, and is a passionate patient advocate. In her personal life, Jennifer plays the roles of a devoted mother to her daughter, a dog's loving guardian (her fur baby), a dedicated wife, caring sister her siblings, and a protective daughter. You can stay updated with Jennifer by following her column, "The Beginner's Guide to Walking."
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Articles by Jennifer V.
They say that time heals all wounds, but when you’re living with a rare autoimmune disorder that has no cure,…
It’s a weird feeling, always waiting for the other shoe to drop, knowing there’s a secret assassin lurking in my…
The kitchen is humming with energy, my daughter has decked out our living room in a sea of blue and…
One of my greatest fears has come to fruition. Last week, my daughter was diagnosed with vitiligo, a disorder that…
The first time I sat in the infusion chair to receive Ultomiris (ravulizumab-cwvz), I felt something I hadn’t experienced for…
The moment I slip into a pair of high heels, something shifts. Not only do heels lengthen my legs, but…
Note: This column describes the author’s own experiences with antidepressants. Not everyone will have the same response to treatment.
I always know when it’s been a busy week because my body tells me so. My muscles ache, I feel…
A couple of years ago, I took on boxing as a form of exercise. I’d never step into the ring,…