In the last year, I’ve gone from battle to battle, surviving one attack after another of neuromyelitis optica spectrum…
Jennifer V.
Jennifer V. (she/her) received her diagnosis of neuromyelitis optica spectrum disorder – aquaporin-4 positive (NMOSD-AQP4) in early 2010. Residing in Toronto, Canada, Jennifer actively manages her condition, which is often unseen, by maintaining a busy schedule. She works as an HR consultant, and is a passionate patient advocate. In her personal life, Jennifer plays the roles of a devoted mother to her daughter, a dog's loving guardian (her fur baby), a dedicated wife, caring sister her siblings, and a protective daughter. You can stay updated with Jennifer by following her column, "The Beginner's Guide to Walking."
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Articles by Jennifer V.
This is part of a series about neuromyelitis optica for NMO Awareness Month. Go here to read more. All…
There’s a lot of things that people don’t see about me. I deal with fatigue, pain, and other unpredictable symptoms…
Neuromyelitis optica spectrum disorder (NMOSD) is largely known for its effect on the central nervous system, but the associated…
This article is part of a series about neuromyelitis optica spectrum disorder for NMO Awareness Month. Go here to…
Note: This column describes the author’s early experiences with Ultomiris (ravulizumab-cwvz) and refers to past therapies she’s tried. Not everyone…
Neuromyelitis optica spectrum disorder affects you at work, with friends, or even in the ER. Here are some tips on how to explain the disease quickly and effectively to avoid mishaps and awkward situations.
Selecting healthcare practitioners is a daunting task, especially when you’re diagnosed with a rare disease like neuromyelitis optica spectrum…
When I felt the familiar heaviness in my body, I bravely faced it. “It’s OK,” I told myself. “I’ve been…
Last weekend, my older brother and I took a sibling getaway to Tampa, Florida, for his birthday, something we’d never…