I’ve been trying to stay active, but after a long family bike ride, I was exhausted. I opened my fridge…
Jennifer V.
Jennifer V. (she/her) received her diagnosis of neuromyelitis optica spectrum disorder – aquaporin-4 positive (NMOSD-AQP4) in early 2010. Residing in Toronto, Canada, Jennifer actively manages her condition, which is often unseen, by maintaining a busy schedule. She works as an HR consultant, and is a passionate patient advocate. In her personal life, Jennifer plays the roles of a devoted mother to her daughter, a dog's loving guardian (her fur baby), a dedicated wife, caring sister her siblings, and a protective daughter. You can stay updated with Jennifer by following her column, "The Beginner's Guide to Walking."
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Articles by Jennifer V.
There’s no way to fully prepare for a flare-up of neuromyelitis optica spectrum disorder (NMOSD) when I’m traveling, though…
Passing through the Great North here in Canada reminds me of how much I love being connected to nature. I…
“It’s like heaven and hell at the same time.” That’s my response whenever I meet another neuromyelitis optica spectrum…
“The world breaks every one and afterward many are strong at the broken places.” — Ernest Hemingway, “A Farewell to…
One of my greatest pet peeves since my diagnosis with neuromyelitis optica spectrum disorder (NMOSD) is when people tell…
When you’re newly diagnosed with a rare disease, you have no idea what you’ll need to endure for the…
My obsession with clean teeth started long before my neuromyelitis optica spectrum disorder (NMOSD) diagnosis. As a child,…
I never wanted to be a disability advocate. I don’t know anyone whose childhood dream involved advocacy of any sort,…
Neuromyelitis optica spectrum disorder (NMOSD), my rare autoimmune disorder, forever throws new symptoms at me when I least…