Dear Reader, It’s me, Jennifer, hoping you don’t mind if I occupy the tiniest space in your mind for the…
Jennifer V.
Jennifer V. (she/her) received her diagnosis of neuromyelitis optica spectrum disorder – aquaporin-4 positive (NMOSD-AQP4) in early 2010. Residing in Toronto, Canada, Jennifer actively manages her condition, which is often unseen, by maintaining a busy schedule. She works as an HR consultant, and is a passionate patient advocate. In her personal life, Jennifer plays the roles of a devoted mother to her daughter, a dog's loving guardian (her fur baby), a dedicated wife, caring sister her siblings, and a protective daughter. You can stay updated with Jennifer by following her column, "The Beginner's Guide to Walking."
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Articles by Jennifer V.
Dear Past Self, I know you were blindsided by this diagnosis. You’re justified in feeling that it’s unfair, because…
My family and I always laugh about my inability to keep plants alive. In my defense, if something isn’t hollering…
There’s nothing more frustrating than working hard to reach a milestone, only to be knocked down and have to start…
I could feel the discomfort in my throat start to build. Despite how often I cleared my throat, I couldn’t…
We all want to belong, but having a rare disease can sometimes feel lonely. Thankfully, the neuromyelitis optica (NMO)…
I sometimes joke that if I had served in the military, I’d win diversity bingo. As a minority woman with…
When was the last time you Googled your name? When I do it, I find my column here at…
It’s the middle of the night. My body has decided it is no longer comfortable. I gingerly move my limbs,…
What do you do when you’ve run out of choices? That’s where I found myself in May 2020. After living…