When you’re newly diagnosed with a rare disease, you have no idea what you’ll need to endure for the…
Articles by Jennifer V.
My obsession with clean teeth started long before my neuromyelitis optica spectrum disorder (NMOSD) diagnosis. As a child,…
I never wanted to be a disability advocate. I don’t know anyone whose childhood dream involved advocacy of any sort,…
Neuromyelitis optica spectrum disorder (NMOSD), my rare autoimmune disorder, forever throws new symptoms at me when I least…
This journey with neuromyelitis optica spectrum disorder (NMOSD) is long, so I’ve always found it important to appreciate those…
“Mama, can we ride one more roller coaster, please?” I looked at Sophie’s desperate face and could see her…
I’ve always loved driving, especially highway driving late at night. Watching every dash on the road zoom by with the…
Dear Reader, It’s me, Jennifer, hoping you don’t mind if I occupy the tiniest space in your mind for the…
Dear Past Self, I know you were blindsided by this diagnosis. You’re justified in feeling that it’s unfair, because…
My family and I always laugh about my inability to keep plants alive. In my defense, if something isn’t hollering…