“It’s like heaven and hell at the same time.” That’s my response whenever I meet another neuromyelitis optica spectrum…
Articles by Jennifer V.
“The world breaks every one and afterward many are strong at the broken places.” — Ernest Hemingway, “A Farewell to…
One of my greatest pet peeves since my diagnosis with neuromyelitis optica spectrum disorder (NMOSD) is when people tell…
When you’re newly diagnosed with a rare disease, you have no idea what you’ll need to endure for the…
My obsession with clean teeth started long before my neuromyelitis optica spectrum disorder (NMOSD) diagnosis. As a child,…
I never wanted to be a disability advocate. I don’t know anyone whose childhood dream involved advocacy of any sort,…
Neuromyelitis optica spectrum disorder (NMOSD), my rare autoimmune disorder, forever throws new symptoms at me when I least…
This journey with neuromyelitis optica spectrum disorder (NMOSD) is long, so I’ve always found it important to appreciate those…
“Mama, can we ride one more roller coaster, please?” I looked at Sophie’s desperate face and could see her…
I’ve always loved driving, especially highway driving late at night. Watching every dash on the road zoom by with the…