Healthcare providers involved in diagnosing and treating rare diseases believe that increased physician education and collaboration with specialized facilities will…
Articles by Bionews Staff
This March, people with neuromyelitis optica spectrum disorder (NMOSD) are celebrating NMO Awareness Month by sharing stories of how…
The National Organization for Rare Disorders (NORD) asks Americans to plan ahead to participate in the Light Up…
Over 230 national organizations signed a letter urging all 50 U.S. state governors to “maintain and expand” flexibility with…
Global Genes has partnered with the Rare Disease Diversity Coalition (RDDC) to advance health equity for rare disease…
The Rare Disease Diversity Coalition (RDDC) awarded $600,000 in grants to ease the disparities faced by rare disease patients of…
A crowdfunding campaign aims to raise $45,000 to support “Rare,” a documentary film featuring the struggles and achievements of people…
A new U.S. initiative called Rare Disease Cures Accelerator–Data and Analytics Platform — dubbed RDCA–DAP — aims to accelerate…
A newly launched non-profit institute is seeking to advance research, and the development of new therapies, for people with rare…
Participation in clinical trials exposes rare disease patients to financial, physical, and emotional pressures, according to the results of a…