Make It Count: A Visit With Prominent NMO Advocate Sumaira Ahmed
I have never met Sumaira Ahmed in person, but her energy and passion radiate through computer screens and phone calls. It’s what convinced many of us to follow her charge and become…
The Beginner's Guide to Walking — Jennifer V.
Jennifer V. (she/her) received her diagnosis of neuromyelitis optica spectrum disorder — aquaporin-4 positive — in early 2010. Residing in Toronto, Canada, Jennifer actively manages her condition, which is often unseen, by maintaining a busy schedule. She serves as a professor at George Brown College, works as an HR consultant, and is a passionate patient advocate. Jennifer also plays the roles of a devoted mother to her daughter, a pug’s loving guardian (her fur baby), a dedicated wife, caring sister to three siblings, and a protective daughter. In moments of sleeplessness, Jennifer finds solace in pug photos and videos.
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How attitudes toward me changed when my disabilities became visible
As a private person, I find it easier to have an invisible disability, despite the emotional toll of appearing “fine” while feeling far from it. For years, I was able to privately manage my…
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