symptoms

How the Inability to Regulate My Temperature Affects Me

I love beach vacations. I put my phone and laptop away, grab a good book, and head out into the sun. But the sun is not to be messed with, especially for an immune-suppressed patient. Many medications can cause sun sensitivity, among other challenges. According to the U.S. Department…

My Worrisome Encounter With COVID-19 as an NMO Patient

For nearly two and a half years, I avoided catching the COVID-19 virus. When I finally ventured away from my home, I was infected. Weeks later, I’m still feeling the effects. My daughter, Sophie, was recently given an opportunity to represent Canada at a global dance competition in Portugal.

New Hobbies That Test My Hand Dexterity? Sure!

Trying something new will always intimidate me. While my head might feel prepared, my body doesn’t always cooperate. This year my husband and I agreed to take in a homestay teenager who is studying dance at the same studio as our young daughter, Sophie. Sydney, our 15-year-old homestay daughter, is…

No Laughing Matter? Not Necessarily

“Ladies and gentlemen, please welcome to the MRI, all the way from the changing room, the one and only …” I’ve sauntered into the room and grabbed the finger heart rate monitor, only to turn it into a makeshift microphone. The nurse looks at me, clearly unamused. I know…

The Burden of Taking Opioids for Neuromyelitis Optica

“Pain is inevitable, suffering is optional.” — Popular proverb I once slipped on black ice at the end of our street. My handbag, its contents, and my cellphone flew just outside of arm’s reach. I could see our home while I lay on the cold and dirty city sidewalk. Maybe…