symptoms

Ad Scientiam is developing new digital biomarkers of neuromyelitis optica spectrum disorder (NMOSD) that may allow continuous and remote monitoring of patients’ symptoms over time. The Paris-based software company announced the program launch along with a similar one for people with generalized myasthenia gravis, another rare autoimmune…

Undergoing plasma exchange, a blood-cleaning procedure, within 10 days after a relapse of neuromyelitis optica spectrum disorder (NMOSD) may help ease symptoms in children positive for antibodies against AQP4 and who do not respond well to corticosteroids. That’s according to a small study that assessed the safety and efficacy…

I have this recurring dream where I’m trapped in a room. I can hear voices on the other side of the door, so I call out, except my voice feels heavy. The words are caught in my mouth, so no one can hear me. I try to get up. I’m…

Everyone knows that how we treat our bodies affects our health. Our habits, behaviors, and self-care — which include sleep, stress management, a healthy diet, and exercise — all play a role. Yet, somehow we often tend to overlook our skin. Particularly as patients with neuromyelitis optica (NMO), why…

One of the most important jobs new parents have is to protect their children from pain. I am a mother of three, and every time one of my kids gets hurt, I want to take on the pain myself. When my youngest daughter, Bella, was hospitalized with neuromyelitis…

In my early 20s, I decided to drop everything and travel across Europe with my close friend Phil. Our trip was memorable for many reasons, including the fact that it was in Italy when I first felt unwell. It was a hot summer, and 14 years ago, most of Europe…

Summer is one of my favorite times of the year. The days are longer, the adventures seem endless, and the smell of barbecue, flowers, and freshly cut grass fill the air. However, high temperatures during the summer, especially in tropical climates, can pose a challenge for those with neuromyelitis…

I love beach vacations. I put my phone and laptop away, grab a good book, and head out into the sun. But the sun is not to be messed with, especially for an immune-suppressed patient. Many medications can cause sun sensitivity, among other challenges. According to the U.S. Department…

For nearly two and a half years, I avoided catching the COVID-19 virus. When I finally ventured away from my home, I was infected. Weeks later, I’m still feeling the effects. My daughter, Sophie, was recently given an opportunity to represent Canada at a global dance competition in Portugal.

Trying something new will always intimidate me. While my head might feel prepared, my body doesn’t always cooperate. This year my husband and I agreed to take in a homestay teenager who is studying dance at the same studio as our young daughter, Sophie. Sydney, our 15-year-old homestay daughter, is…