Combining blood-cleaning therapies such as plasma exchange or immunoadsorption with standard steroid treatment can improve recovery outcomes in patients having an attack of neuromyelitis optica spectrum disorder (NMOSD), a study that reported no significant safety concerns shows. The study, “Efficacy and safety of apheresis therapy in AQP4 antibody‐positive…
steroids
The risk of developing type 2 diabetes is more than 50% higher among people with neuromyelitis optica spectrum disorder (NMOSD) compared with matched people without the neurological condition, a study found. Results suggest that the risk of diabetes is particularly high in NMOSD patients who have receive treatment with…
While most of us try not to judge a book by its cover, we inevitably still do it at some point. Society has conditioned us to judge people by their physical appearance first, and then their personality. Additionally, people usually only recognize illness when they can see it. When we…
The Ongoing Process of Grief
It rained the day before and after, but on the day we buried Dad, the overcast weather parted for a picturesque blue sky, complete with rolling white clouds. For mid-April, it could’ve been a cold, miserable day, matching our mood. Instead, the sun warmed us, so we didn’t need…
Food for the Soul and the Body
When I walk through the doors of Satay Sate, a local Indonesian restaurant, the aromas that hit me instantly remind me of my childhood. I first ventured there after my dad died, and I was brought to tears at my first bite. It was like they had stolen Dad’s recipes.
Long-term treatment with Enspryng (satralizumab) safely and sustainably prevents relapses in adolescents and adults with neuromyelitis optica spectrum disorder (NMOSD) who are positive for antibodies against the aquaporin-4 protein (AQP4-IgG), according to four-year data from the SAkura Phase 3 clinical trials. These benefits were observed when the therapy…
In early April, I became a grandmother (Gigi) for the first time. Reaching this important milestone gave me pause. In the months leading up to the baby’s birth, I thought a lot about what kind of grandmother I would be. Phoenyx was born just 16 days after my 50th birthday,…
One of the most difficult aspects for me of living with neuromyelitis optica (NMO) is dealing with chronic pain. It’s what most affects my quality of life, but in my opinion, it’s also the least addressed and treated issue. In 2012,…
Recent Posts
- With NMOSD, my to-do lists now include staying well, as well as staying busy
- Advocates join forces to create, celebrate World NMOSD Awareness Day
- With a compromised immune system, constant infections are my nemesis
- Approved NMOSD therapies better than rituximab at preventing relapses
- Embracing an opportunity for advocacy on Rare Disease Day