How I handle the health impact of daylight saving time

It’s been over two weeks since we were required to “spring forward” for the arrival of daylight saving time (DST). As a neuromyelitis optica spectrum disorder (NMOSD) patient, I’m not a fan. While the concept was introduced as a way to maximize daylight hours during the warmer months,…

Sleeping sitting up, and other silly things I do because of NMOSD

Neuromyelitis optica spectrum disorder (NMOSD), my rare autoimmune disorder, forever throws new symptoms at me when I least expect them. To combat these surprises, I’ve had to create several unconventional coping mechanisms, many of them funny, awkward, or downright silly, especially to others who might witness them. Following…

My Daughter Continues to Have Worrisome Sleep and Breathing Problems

Let’s talk about sleep. Sleep is essential for everyone, as it allows our bodies to rest and recharge, especially after a long day. According to the Mayo Clinic, adults need seven or more hours of sleep each night, while the recommended amount of sleep for teenagers like my 14-year-old…

My Struggles With Sleep Disorders as an NMO Patient

Most nights, I can’t wait to go to bed. I’ll rush through my bedtime routine, but even though I’m beyond exhausted, I can’t seem to fall asleep. It secretly irks me to be the only one in my household still awake at night. Even my pug, Magnus, who normally barks…