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March 30, 2022 Columns by Jennifer V.

My First NMO Symptoms Appeared Years Before My Diagnosis

It didn’t start as a windy day. The sun beaming down on my face felt oh so good. Spending time on the water with my family was one of my favorite activities. At first, I thought Dad’s 28-foot boat purchase felt excessive, but when we piled our entire family onto…

December 15, 2021 Columns by Jennifer V.

My Tattoo Reminds Me to Put My Right Foot Forward and Keep Moving

Tattoos have always been a form of expression. Throughout history, tattoos have been used to convey love and grief, depict religious symbols, and even serve as a form of punishment. The oldest known tattoo was found on “Iceman,” a mummified corpse who lived 5,200 years ago. The art of…

November 12, 2021 Columns by Jennifer V.

Turn Up the Volume, but Only Until It Hurts: My NMOSD Diagnosis Story

I will always love the feeling of a good bass line, the way the sound escapes concert speakers and vibrates through my entire body. It’s poetic justice that this feeling can now trigger painful spasms, a symptom of neuromyelitis optica spectrum disorder (NMOSD). My husband (then fiancé) and I had…

February 4, 2021 Columns by Mileidys Almaguer Iniguez

When I Was Paralyzed, Envisioning My Future Helped Me Hold On to Hope

This column is a message to all of the patients currently undergoing an extended hospital stay. I know it is easy for people to share encouraging words when they aren’t the ones in a difficult situation. But let me just say that I know what you are going through. Unfortunately,…

Recent Posts

  • Returning to acupuncture for pain management after 14 years
  • Enspryng helps patients remain relapse-free after 6 months: Study
  • For me, preventing relapses involves harsh medication side effects
  • Smoking tied to disability risk in AQP4-NMOSD patients: Study
  • I have NMOSD, and I want to climb a volcano
  • Blood cell ratio may be biomarker of NMOSD disability: Study
  • Off-label tocilizumab works better when taken after 1st attack: Study
  • What’s the difference between generic and brand-name drugs?
  • Switching doctors with NMOSD: When and how to do it
  • Regular rituximab treatment lessens NMOSD relapses: Real-world data


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