People with neuromyelitis optica spectrum disorder (NMOSD) have significantly lower vitamin D levels in their blood than do healthy individuals, according to a meta-analysis of data from studies covering more than 900 people in Asia. While the findings don’t prove that vitamin D deficiency causes NMOSD, they call attention…
nutrition
Sometimes while I’m waiting for my prescription, I find myself meandering through the aisles of our local pharmacy. At one point I found myself facing the wall of vitamin supplements. Rows upon rows of nondescript bottles greeted me, each distinguished only by a large letter on its front. The array…
Neuromyelitis optica spectrum disorder (NMOSD) patients have significantly poorer nutritional status than healthy people which is associated with worse quality of life, a study found. Longer disease duration; poor sleep quality; being a woman; and higher levels of anxiety, depression, or fatigue were found to be significantly associated with…
During my transverse myelitis attack in 2009, I lost feeling and control in the lower half of my body. My medical team determined that I needed a spinal tap to reduce the fluid buildup. The procedure was done right in my hospital room, and the only condition was that…
I know it’s not a popular choice, but I enjoy sweet and tart zinfandel. I like the delightful pink color, and rosé is a snobby word that’s fun to say. Zinfandels should be enjoyed in the warm summer months, and are accompanied best by seafood. Maybe it’s just the…
Food for the Soul and the Body
When I walk through the doors of Satay Sate, a local Indonesian restaurant, the aromas that hit me instantly remind me of my childhood. I first ventured there after my dad died, and I was brought to tears at my first bite. It was like they had stolen Dad’s recipes.
Activities are underway this month to raise awareness about neuromyelitis optica spectrum disorder (NMOSD), a rare progressive autoimmune disorder that affects about 15,000 people in the U.S. Patients, caregivers, and advocates nationwide are flooding social media platforms, garnering state proclamations, participating in educational webinars, and holding fundraisers — all…
Recent Posts
- Soliris reduces relapse rates in AQP4-positive NMOSD patients: Study
- The pain of NMOSD nerve sensitivity means more than just a cold shoulder
- Most adults with NMOSD use biologic therapies: Registry study
- Every time I turn to Dr. Google, I get an immune system mystery
- Conventional NMOSD treatment effective in double-negative cases
- Grieving how NMOSD has left me uncomfortable in my own skin
- Enspryng outperforms standard immunosuppressants in NMOSD study
- Slow and steady: I’m ditching big resolutions and easing into a new year
- Late-onset NMOSD responds better to newer, highly effective therapies
- New biomarker may help gauge disease severity in NMOSD