A new normal: Adjusting to life after an NMOSD relapse

When I felt the familiar heaviness in my body, I bravely faced it. “It’s OK,” I told myself. “I’ve been here before and recovered. I can do this.” As I lay in the hospital bed, a prisoner to the many doctors and specialists who checked on me throughout the day…

ECTRIMS 2023: Early, nonspecific symptoms may precede 1st attack

Nearly 1 in 5 people with neuromyelitis optica spectrum disorder (NMOSD) experience early neurological symptoms prior to their first established NMOSD attack, new research suggests. These symptoms could represent an NMOSD prodrome, a disease stage where nonspecific symptoms emerge before the classic manifestations of the disease. A better…

How medical marijuana eases my daughter’s NMOSD pain

Note: This column describes the author’s own experiences with medical marijuana products. Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. Living in Colorado is a dream for many reasons, including the fact that there are over 300…

Brainstem lesions linked to acute respiratory failure: Study

The presence of lesions in the brain’s middle medulla, a control center for breathing, increases the likelihood of acute respiratory failure in people with neuromyelitis optica spectrum disorder (NMOSD), a study suggests. While middle medullary lesions on MRI were the key predictor of acute respiratory failure in patients with…

Subset of NMOSD patients may have benign disease course

A small subset of people with neuromyelitis optica spectrum disorder (NMOSD) do not accumulate significant functional disability in the 15 years following symptom onset, according to a recent study. Called benign NMOSD, these patients were more likely to be Caucasian, less likely to have spinal cord involvement at disease…