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May 10, 2023 Columns by Jennifer V.

Even good relationships take effort — including mine with my neurologist

This journey with neuromyelitis optica spectrum disorder (NMOSD) is long, so I’ve always found it important to appreciate those who support and care for me. And my neurologist has been with me since the beginning. When I matched the criteria for NMOSD, which includes optic neuritis and…

July 5, 2022 Columns by Candice Galvan

For NMO Patients Like My Daughter, Summer Can Cause Heat Intolerance Symptoms

Summer is one of my favorite times of the year. The days are longer, the adventures seem endless, and the smell of barbecue, flowers, and freshly cut grass fill the air. However, high temperatures during the summer, especially in tropical climates, can pose a challenge for those with neuromyelitis…

January 19, 2021 Columns by Lelainia Lloyd

I Saved My Own Life After Being Repeatedly Misdiagnosed

I can trace my first neuromyelitis optica (NMO) symptoms to when I was 12 years old. I’d be walking down a flight of stairs, and for a split second it was as if a switch had been thrown, cutting off communication between my brain and my legs, and I’d fall…

Recent Posts

  • Returning to acupuncture for pain management after 14 years
  • Enspryng helps patients remain relapse-free after 6 months: Study
  • For me, preventing relapses involves harsh medication side effects
  • Smoking tied to disability risk in AQP4-NMOSD patients: Study
  • I have NMOSD, and I want to climb a volcano
  • Blood cell ratio may be biomarker of NMOSD disability: Study
  • Off-label tocilizumab works better when taken after 1st attack: Study
  • What’s the difference between generic and brand-name drugs?
  • Switching doctors with NMOSD: When and how to do it
  • Regular rituximab treatment lessens NMOSD relapses: Real-world data


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