hydration

Why maintaining good vein health helps me better manage NMOSD

Throughout my journey with neuromyelitis optica spectrum disorder (NMOSD), I’ve often overlooked the importance of maintaining good vein health. Because of that, I’ve paid the price by having far too many difficult days. While we might not think about our veins until there’s an issue, they perform essential functions…

How the Inability to Regulate My Temperature Affects Me

I love beach vacations. I put my phone and laptop away, grab a good book, and head out into the sun. But the sun is not to be messed with, especially for an immune-suppressed patient. Many medications can cause sun sensitivity, among other challenges. According to the U.S. Department…

Heat Hacks for Summer Survival

Summer has always been a struggle for me. While most people celebrate the warmer months and are off enjoying the great outdoors, I dread this time of year because I am very heat-sensitive. As soon as the temperature rises above 22 C (72 F), I feel terrible. The signals…