gratitude

It’s astonishing how quickly life can shrink down to just the present moment when you’re living with a chronic illness like neuromyelitis optica spectrum disorder (NMOSD). Its symptoms have a way of pulling you into the now with an intensity that can feel all-consuming, whether it’s managing fatigue,…

Hello, friends. It’s long overdue that I thank you — my loyal readers and those who have recently joined me — for allowing me to share my neuromyelitis optica spectrum disorder (NMOSD) journey with you. Every time I sit down to write, I am reminded that this space —…

In the decade that I’ve lived with neuromyelitis optica spectrum disorder (NMOSD), I’ve connected with many other patients who say they’ve had trouble overcoming the heartache of not knowing who will show up for them in times of crisis. It’s easy to recall my similar pain when I’m speaking…

The new year can represent a new start, except it isn’t, really. I still have neuromyelitis optica (NMO), and the challenges that existed in our lives last year are still here. But what a new year can become is a moment to pause, reflect, and commit to new habits…

In the weeks between Thanksgiving and Christmas, I usually spend some time thinking about my loved ones and what they mean to me. This year, I thought I’d share a love letter to my husband of 12 years, Mike, in hopes that other neuromyelitis optica (NMO) patients might relate.

Thankful, grateful, blessed. These three words are part of a table decoration my husband recently bought me and placed on my desk as a reminder of the incredible life we are living. No matter the time or day, these three words give me hope and inspire positive thoughts and feelings.

While here in Canada we celebrate Thanksgiving a little earlier than our friends in the United States, I feel it works to my advantage. I treat the Thanksgiving holiday — which falls on the second Monday in October in Canada — as the start of a period of…