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May 1, 2024 Columns by Jennifer V.

Facing the unknowns of NMOSD prompts a major life change

If only I had a crystal ball that told me exactly how much time I have left, I’d know if I could spend my Sunday on the sofa or if I’d need to plan my dream trip to Indonesia and get on the next flight. When I was diagnosed…

June 7, 2023 Columns by Jennifer V.

After 14 years with NMOSD, I’m tired of it running things

When you’re newly diagnosed with a rare disease, you have no idea what you’ll need to endure for the rest of your life. The shock of the diagnosis takes up all your energy, and you’re forced to live in the moment. There isn’t time to think about your future.

Recent Posts

  • Infection rates lower with Enspryng over other immunosuppressives
  • Surviving the storms of life with lessons I’ve learned from NMOSD
  • Late-onset NMOSD linked to worse recovery, faster disability
  • Returning to acupuncture for pain management after 14 years
  • Enspryng helps patients remain relapse-free after 6 months: Study
  • For me, preventing relapses involves harsh medication side effects
  • Smoking tied to disability risk in AQP4-NMOSD patients: Study
  • I have NMOSD, and I want to climb a volcano
  • Blood cell ratio may be biomarker of NMOSD disability: Study
  • Off-label tocilizumab works better when taken after 1st attack: Study


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