It was one of those stressful moments when I simply did what needed to be done. My mother had been visiting us in the city for a couple of weeks, and I was sending her home on the train. Parking here in downtown Toronto is nearly impossible, so my husband…
exercise
A couple of years ago, I took on boxing as a form of exercise. I’d never step into the ring, but I loved working on proper form, building strength, and seeing how much conditioning I could handle. I was proud of the progress I made. Then, as often happens with…
One of my greatest frustrations of living with a rare disease is how it affects my ability to exercise. Before neuromyelitis optica spectrum disorder (NMOSD), I enjoyed being an athlete and a dancer. When I graduated from high school, I weighed 94 pounds, and I maintained my small…
I’ve been so exhausted before that I’ve said, “No one will know if I leave the kitchen looking like this.” Dirty dishes will be piled up in the sink, while clean dishes are still in the dishwasher. A sticky substance might appear on the counter, but thankfully the black marble…
The daily grind of ingesting pills for my neuromyelitis optica spectrum disorder can be very disheartening. There is medication for my nerve pain, to combat the fatigue, to manage the overall pain, to help me sleep. There are even pills to offset the heartburn that happens because of all the…
Recent Posts
- Advocates join forces to create, celebrate World NMOSD Awareness Day
- With a compromised immune system, constant infections are my nemesis
- Approved NMOSD therapies better than rituximab at preventing relapses
- Embracing an opportunity for advocacy on Rare Disease Day
- Cognitive issues affect nearly 1 in 3 with NMOSD, study finds