COVID-19 pandemic

Access to care and the use of healthcare services during the COVID-19 pandemic were generally kept up in people affiliated with specialized centers in Germany and Austria who had neuromyelitis optica spectrum disorder (NMOSD) and myelin oligodendrocyte glycoprotein antibody disease (MOGAD), a study showed. Moreover, “patients’ satisfaction with medical…

Over the weekend, I took my daughter to her first in-person birthday party in almost three years. Fate can be cruel sometimes, which is how I found myself at an indoor jungle gym. I forgot how loud children’s screams and high-pitched voices can be, especially when amplified by the warehouse-turned-gym…

For nearly two and a half years, I avoided catching the COVID-19 virus. When I finally ventured away from my home, I was infected. Weeks later, I’m still feeling the effects. My daughter, Sophie, was recently given an opportunity to represent Canada at a global dance competition in Portugal.

Since the beginning of the COVID-19 pandemic in early 2020, many of us across the country have been doing everything we can to protect those around us and ourselves. I still remember when a federal mask mandate on public transportation was issued in the U.S. at the start of…

The National Organization for Rare Disorders (NORD) has updated its State Report Card to make it more digitally friendly and added telehealth to its categories of rare disease policy issues in a nod to its increased use during the ongoing COVID-19 pandemic. NORD’s report card project began seven…