The Beginner's Guide to Walking - a Column by Jennifer Van Amerom

What Neuromyelitis Optica Skin Symptoms Feel Like

Everyone knows that how we treat our bodies affects our health. Our habits, behaviors, and self-care — which include sleep, stress management, a healthy diet, and exercise — all play a role. Yet, somehow we often tend to overlook our skin. Particularly as patients with neuromyelitis optica (NMO), why…

How to Offer Help to a Loved One With NMO

When I first became sick with neuromyelitis optica (NMO), people often told me how sorry they were. I believe they genuinely meant it, but it’s always an uncomfortable and awkward conversation for both parties. As the patient, I never want people to feel sad, so my natural response…

Managing the Daily Demands of Life as an NMO Patient

There are so many things I still want to do in life. I never stop. Perhaps it’s because I feel that I’m up against a clock. I constantly wonder how long it will be until my neuromyelitis optica (NMO) takes over and I am further limited in energy and…

How Relationships Provide Essential Support for NMO Patients

The greatest challenge I’ve had to overcome as someone with neuromyelitis optica (NMO) — something I’ve heard echoed by other patients — is the need for better support. This begins with the expectations we each have of those in our lives. When those expectations aren’t met, we…

For Optimal Healthcare, Doctors Need to Speak to One Another

My family has recently become obsessed with the “Overcooked!” video game. With up to four players, we work against the clock chopping vegetables, frying fish or meat, and assembling plates, all while going up against obstacles like the frozen tundra or mice that steal your supplies. It’s incredibly…

My Experience With a Bone Density Test as an NMO Patient

It feels like there’s a test for everything. As I hit milestones with neuromyelitis optica (NMO), a rare autoimmune disease that can affect the spinal cord and optic nerves, I am subjected to more tests. The latest was a bone density test, also called a dual-energy X-ray absorptiometry (DEXA)…