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First in a series. Christmas, a bustling time for all, becomes particularly challenging for patients like me who have neuromyelitis optica spectrum disorder (NMOSD), as it can take us out of our routine and add unwanted stress. One holiday memory stands out and is yet to be beat:…
Everyone has a breaking point. It’s natural to feel overwhelmed by sadness, depression, or anxiety when life’s pressures become too heavy. Those of us who have chronic illnesses have our breaking points, too. As a lifelong patient with neuromyelitis optica spectrum disorder (NMOSD), I’d like to believe it…
As November closes, I’m reflecting on how grateful I am to have my family. Dear Family, I know none of you chose this life as a caregiver. Neither did I, but that doesn’t change the guilt I feel about you having to help me manage my health. The day…
The snoring emanating from my dog, Magnus, is distinctly different from a human’s. His gentle, rhythmic purr, characteristic of pugs, has a mesmerizing yet endearing quality. It’s seamlessly woven itself into the fabric of my daily life, serving as a comforting soundtrack to my existence. When my previous pug,…
My health situation has become incredibly trying recently. I’m hesitant to shed any tears because I fear they won’t stop. When I was diagnosed with neuromyelitis optica spectrum disorder (NMOSD), I was told I might face one or more additional autoimmune diseases in my lifetime. Initially, this warning seemed…
Knowing when to make that crucial trip to the emergency room is a concern that plagues everybody with neuromyelitis optica spectrum disorder (NMOSD). It’s a dilemma that leaves us anxious and unsure. I’m battling a bladder infection, and admitting I have one typically fills me with embarrassment. But each…
As I do on any typical morning, I peered at my reflection in the mirror, squinting until I managed to insert my contacts. On this particular morning, however, despite my blurred vision, I couldn’t help but notice a peculiar bump on my right ear. “What fresh nightmare is this?” I…
Serving our community should matter to all individuals. I’ve always believed that if each person were to dedicate time to a charitable cause, our society could bring about profound change. Just imagine the kind of world we could create together. Even though I came of age in a household with…
I love the fall. It’s the perfect balance of weather between the summer’s heat and the winter’s snow. I love wearing layers of clothing, and when the leaves on the trees change their colors it means we’re closer to my favorite holiday, Thanksgiving. I also love the fall because there…
Children don’t see race, age, wealth, weight, or disability, we’re told. Instead, they look for unconditional love. I believe that’s true until a certain point; then their innocence is forever lost. My 11-year-old daughter, Sophie, has always been a generous person. Even when she began to grow up and realize…
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