On a recent overnight trip, my family used a couple of pieces of our luggage set. My husband, Mike, reached into one of the side pockets and retrieved something that shocked him. “What’s this?!” His bewildered look told me he already knew, but he wanted my acknowledgment. I immediately recognized…
This week, my sweet girl, Sophie, has turned the big 10. I’m feeling all verklempt because they told me she couldn’t exist. But doctors are wrong sometimes, and I’m glad I trusted my gut. Twelve years ago, little information was available about neuromyelitis optica (NMO), and even less about…
In my early 20s, I decided to drop everything and travel across Europe with my close friend Phil. Our trip was memorable for many reasons, including the fact that it was in Italy when I first felt unwell. It was a hot summer, and 14 years ago, most of Europe…
Europe is under an extreme weather alert. It’s so hot that certain trains between countries are not operational — the tracks are buckling under the extreme heat. This makes me think of climate in general and in particular how green space, plants, and gardening have positively affected my…
The phrase “fake it till you make it” is meant to encourage self-confidence. During many tough moments in my life, like learning to walk again, I’ve relied on this phrase. There are moments when I don’t feel good, but I’ll fake it and say I feel fine. Sometimes saying how…
Words can hurt, especially labels. We can deny a label all we want, but terms like “disabled” will close many doors. What does it mean to be disabled, though? I find the term offensive because it implies I’m not capable, which is far from the truth. Do I live with…
I love beach vacations. I put my phone and laptop away, grab a good book, and head out into the sun. But the sun is not to be messed with, especially for an immune-suppressed patient. Many medications can cause sun sensitivity, among other challenges. According to the U.S. Department…
For nearly two and a half years, I avoided catching the COVID-19 virus. When I finally ventured away from my home, I was infected. Weeks later, I’m still feeling the effects. My daughter, Sophie, was recently given an opportunity to represent Canada at a global dance competition in Portugal.
Trying something new will always intimidate me. While my head might feel prepared, my body doesn’t always cooperate. This year my husband and I agreed to take in a homestay teenager who is studying dance at the same studio as our young daughter, Sophie. Sydney, our 15-year-old homestay daughter, is…
During my transverse myelitis attack in 2009, I lost feeling and control in the lower half of my body. My medical team determined that I needed a spinal tap to reduce the fluid buildup. The procedure was done right in my hospital room, and the only condition was that…
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