The Beginner's Guide to Walking - a Column by Jennifer Van Amerom

How the Inability to Regulate My Temperature Affects Me

I love beach vacations. I put my phone and laptop away, grab a good book, and head out into the sun. But the sun is not to be messed with, especially for an immune-suppressed patient. Many medications can cause sun sensitivity, among other challenges. According to the U.S. Department…

My Worrisome Encounter With COVID-19 as an NMO Patient

For nearly two and a half years, I avoided catching the COVID-19 virus. When I finally ventured away from my home, I was infected. Weeks later, I’m still feeling the effects. My daughter, Sophie, was recently given an opportunity to represent Canada at a global dance competition in Portugal.

New Hobbies That Test My Hand Dexterity? Sure!

Trying something new will always intimidate me. While my head might feel prepared, my body doesn’t always cooperate. This year my husband and I agreed to take in a homestay teenager who is studying dance at the same studio as our young daughter, Sophie. Sydney, our 15-year-old homestay daughter, is…

Let’s Talk About Sex, Intimacy, and Rare Disease

“Let’s talk about sex, baby/ Let’s talk about you and me/ Let’s talk about all the good things/ And the bad things that may be/ Let’s talk about sex.” — Salt-N-Pepa My friends and I used to giggle every time this song came on the radio in the early 1990s.

How Air Travel Can Affect NMO Patients

At one point in my life, I thought I wanted to be a flight attendant. As a first-generation Canadian, my parents, who immigrated here in 1968, told me stories of foreign countries and the people, the unique food, and the different languages. For most of my childhood, I grew up…