One of my greatest frustrations of living with a rare disease is how it affects my ability to exercise.
Jennifer V.
Jennifer V. (she/her) received her diagnosis of neuromyelitis optica spectrum disorder – aquaporin-4 positive (NMOSD-AQP4) in early 2010. Residing in Toronto, Canada, Jennifer actively manages her condition, which is often unseen, by maintaining a busy schedule. She works as an HR consultant, and is a passionate patient advocate. In her personal life, Jennifer plays the roles of a devoted mother to her daughter, a dog's loving guardian (her fur baby), a dedicated wife, caring sister her siblings, and a protective daughter. You can stay updated with Jennifer by following her column, "The Beginner's Guide to Walking."
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Articles by Jennifer V.
In the decade that I’ve lived with neuromyelitis optica spectrum disorder (NMOSD), I’ve connected with many other patients who…
It’s been over two weeks since we were required to “spring forward” for the arrival of daylight saving time…
I sometimes feel like I’m laughing in the face of death. When I was diagnosed with neuromyelitis optica spectrum…
I’ve always been a tech nerd, falling in love with the newest tool in the Internet of Things,…
Describing myself has always been a challenge. I’m as complex as the next person, but I feel like I’ve been…
Sometimes while I’m waiting for my prescription, I find myself meandering through the aisles of our local pharmacy. At one…
I’ve been thin. Very thin. And I’m currently overweight. Very overweight. It’s not lost on me that in this lifetime,…
It had to be something special for me to break my silence on X (formerly known as Twitter). I…
I consider my ability to swallow multiple pills at the same time both a skill and a necessity. Some days,…